Back in Charleston

I am very frustrated, scared and stressed as I write this post so I will keep it as short and happy as I can. Last night around 1 am, Wesleigh Anne began fussing and had a fever. She was working harder to breathe and requiring more oxygen. We gave her Tylenol and then Motrin when the Tylenol didn't work. By 4 am, we called Charleston. She had a 104.4 fever and didn't look good. We took her to the ER in Conway where she had a breathing tube placed and then was shipped to Charleston. Apparently, Wesleigh Anne likes Charleston. Currently, they are working on getting a central line to give medication through and trying to figure out what is going on.

All of this has prompted a very serious discussion between me, Trey and our cardiologist, Dr Forbus. Ya know, all of this time we have assumed that when we prayed for God's will in our lives that meant Wesleigh Anne getting better. After all, God's will couldn't be for our firstborn child to die, right?!?! Well, today it hit me. What if God's will isn't for Wesleigh Anne to live? What if all this time I've been assuming the wrong thing? Don't get me wrong, we're still fighting like crazy for Wesleigh Anne. We love her tremendously and want her to have a long, happy life. But, we also don't want to torture her. We don't want to poke and prod her every minute of every day of her life. So, I guess what this comes down to is whether the doctors think that long-term Wesleigh Anne's problems are fixable. Please pray for our doctors as they think about this answer. Also, pray for strength for us as we are on a downward spiral of this roller coaster. Pray for God's will in Wesleigh Anne's life...whatever that may mean. And lastly, pray for our acceptance and peace with whatever may come. Thank you all for loving us and praying for us through this crazy, crazy time.