Eight Years: Celebrate the Little Things
6 years ago
Friday, October 30, 2009
Wesleigh Anne and the Terrible, Horrible, No Good, Very Bad Day...
Perhaps my thoughts yesterday were a foreshadowing of what was to come. We got a call this morning that Wesleigh Anne had a very, VERY bad night. Excuse a lot of medical terminology, but I'll try to explain as I go. Wesleigh Anne's oxygen sats dropped to 11 last night. For reference, "normal" sats are 90-100 and WA's "normal" is 75-85. Her blood pressure dropped into the 40's. Normal for a baby is in the 80s. They have been unable to find any signs of infection and so all of this badness is coming from her heart. This is also bad because her heart surgeon is "out of town" until Tuesday. We've been told that when he's out of town and one of his babies goes bad then he sometimes miraculously appears...so that's what we're hoping for. At this point they have Wesleigh Anne on paralyzing medicine so that they can totally control her breathing. On that medicine, her oxygen saturations are better. They also have her on dopamine for blood pressure. On that medicine, her blood pressure is okay. So, she's very, very sick but a little more stable at this point. If she gets unstable again, they would have to put her on a machine called an eccmo machine...what that does is bypass her heart and lungs. It is basically the same machine they put her on for surgery...the "bypass" machine. That would hopefully give them time to develop a plan and get her to surgery. For now, please pray. Pray for Wesleigh Anne, her doctors and for our strength and acceptance of whatever happens.
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Hi, my mother Judy Black Foster, went to Columbia College with one of your mothers. She has been keeping me updated about Wesleigh Anne ever since her birth. I have been praying, praying, and praying. My 2 1/2 year old daughter, Lydia, prays every night for God to fix Wesleigh Anne's heart. She also sings Happy Birthday to Wesleigh Anne every night after her prayers. Please know that we will continue to pray - and weep with you during your fears, anger, and frustration... Blaine Bradford
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ReplyDeleteDear Heart Family
ReplyDeleteMy son Ryan Jeffrey " RJ". I was born April 22,2008 at MUSC with hypoplastic left heart, also have truncus arterosis along with the hypoplastic heart. So we know about the up and downs you and your family are facing. Your little girl is in the best hands that she could be in right now because God has his hand around her right now. My family knows about EMCO Rj was on it for 11 days. Just never give up even when all of the doctors start telling you about the numbers with kids on EMCO those are only numbers. God has the last word. Feel Free to call me and my family anytime if you need someone to talk to 864 574 9323 Stacey Stokes
Almighty God, and merciful Father, to whom alone belong the issues of life and death: Look down from heaven, we humbly beseech thee, with the eyes of mercy upon this child now lying upon the bed of sickness: Visit her, 0 Lord, with thy salvation; deliver her in thy good appointed time from his bodily pain, and save her soul for thy mercies' sake: That, if it shall be thy pleasure to prolong her days here on earth, she may live to thee, and be an instrument of thy glory, by serving thee faithfully, and doing good in her generation; or else receive her into those heavenly habitations, where the souls of them that sleep in the Lord Jesus enjoy perpetual rest and felicity.