Sunday, November 1, 2009

Another rough morning

We again woke up to a call this morning at 6:30 am to say that the doctors in the unit were "coding" our daughter. This means that they were doing chest compressions and giving her medication to keep her going. We rushed to the hospital in time for her to be on the upswing and getting better. She is now "stable" in the ICU, meaning she is still paralyzed and sedated with medications and is on several medications to keep her blood pressure and heart rate steady. We are still waiting for Dr Bradley to get back in town and assemble a plan for Wesleigh Anne's third heart surgery. From talking to the cardiologists, Wesleigh Anne has not grown enough to fix her actual tricuspid valve. That leaves putting in a mechanical valve (far from ideal for an infant due to having to be on blood thinners for the rest of your life and the fact that the valve would not grow with her and would have to be continually replaced). The other option might possibly be transplant. Heart transplants in children do very well most of the time. However, in infants, it involves a long wait. It also involves us hoping for someone else's child to die...not a good thought for us. Ultimately we know that Dr. Bradley's plan doesn't matter. God's plan matters. Wesleigh Anne is appointed a time to die...whether that is a week from now, hours from now, or years from now. We know that Wesleigh Anne cannot continue on this route for much longer. We also know that we cannot continue on this route for much longer. But, we will wait for Dr Bradley and the doctors in the PCICU to have an idea or plan. And then we will have to decide...and that will probably be the hardest decision of our lives. Please, please pray for us and our sweet little girl.

3 comments:

  1. Oh my goodness, I'm praying for your sweet little girl! I have a 5 month old with Down syndrome and he had open heart surgery at 2 months old so I know this has got to be so terribly hard to go through. He is not much younger than Wesleigh Anne-love her name by the way. I used to live in MB and know Conway well. Best wishes for you and your daughter and I will keep her in my prayers.

    ReplyDelete
  2. Know that your sweet baby girl & your family are being lifted in prayer
    She is an absolute doll baby!

    Peace & blessings~ Rebecca

    ReplyDelete
  3. Liz,

    I have been keeping up with your precious family on the caring bridge website and now through your beautiful blog. I continue to admire your strength and courage through all this. Wesleigh Anne is truly blessed to have you as her mother. I will continue to pray for your family daily. I hope that I can one day possess the faith that you have. You are an inspiration to us all.

    Take Care

    Laura Dodd Baltz

    ReplyDelete

Followers

Playlist


Get a playlist! Standalone player Get Ringtones